When we find a [genetic] defect, very few times does that give a direct path towards developing a therapy or intervention,” says Stephen Friend, president of Sage Bionetworks, the biomedical research non-profit leading the project. “What if we flipped what we were trying to do? Maybe those who are sick are the wrong people to be studying.
This is exactly why I would be first in line to open-source my genome and add it to a global genetic source code repo. If that were only a thing.